Engagement Opportunities

engagement opp graphic

Are you interested in partnering with projects, research teams and national organizations to have an impact beyond your local organization?  If so, please take a moment to let us know your interests by completing the PFA Interest Survey.

National Quality Forum Annual Conference

Washington, DC, March 24-26, 2019

As part of the 20th Anniversary celebrations, NQF is pleased to announce an inaugural complimentary patient & caregiver registration to the NQF Annual Conference.

Healthcare leaders will have the opportunity to learn about ways to improve quality for their patients and communities. Government agencies, policymakers, health care providers, and various others will contribute to patient voice lead discussions.

CQC Keynote Address Opportunity

Inland Empire, CA, March 25, 2019

California Quality Collaborative is looking for a patient local to the Inland Empire to provide a keynote address to Inland Empire medical groups regarding the importance of care transformation to individual patients and to the community at large. On March 25th CQC brings together representatives from the Inland Empire medical groups for an interactive, day-long learning session on building quality improvement capacity and infrastructure to achieve meaningful care transformation. Recognizing the complexities specific to the Inland Empire, we will showcase approaches that have worked locally. This will be an opportunity to hear from others in the region about lessons learned and successful strategies to achieve high-quality care. In addition, as CQC plans to launch a program in the Inland Empire later this year, this event represents a valuable opportunity for CQC to hear from you what would be of highest value to support transformational change in the region.

If you are interested or would like more information, contact Alex Stack at alexandria.d.stack@gmail.com

Schwartz Center Compassion in Action Healthcare Conference

Boston, MA, September 8-10, 2019

Connect with more than 500 health care professionals, system leaders and others who are committed to making compassionate healthcare a priority in their organizations and communities.

Engage with colleagues from across the globe and experience immersive sessions that will leave you inspired, equipped with knowledge and skills and supported by new partners to create and sustain cultures of compassion.

PCORI Peer Reviewers

Need patient reviewers for bariatric surgery, asthma.

The goal of peer review is to ensure that the primary research studies funded by the Patient Centered Outcomes Research Institute (PCORI) are held to the highest standards of scientific integrity, methodological rigor, and usefulness to patients, caregivers, clinicians, and other healthcare stakeholders. By law, all PCORI-funded primary research (i.e., research asking which of two or more approaches is better) must undergo peer review. The peer-review process adds to the credibility, authority, trustworthiness, and relevance of PCORI-funded research findings.

Visit here for more information and to apply.

Pediatric Starter Kit: Having the Conversation with Your Seriously Ill Child

The Conversation Project is a national initiative dedicated to helping people talk about their wishes for end-of-life care. The Pediatric Starter Kit is specifically designed to help parents of seriously ill children who want guidance about “having the conversation” with their children.

Starter Kit

The Conversation Project Website: https://theconversationproject.org/starter-kits/#pediatric-starter-kit

What Real Patient Engagement in Research Should Be

Libby Hoy, founder and CEO of Patient Family Centered Care (PFCC) Partners, shares an experience she had as a caregiver communicating with a researcher, and highlights how patient-centered outcomes research is improving these conversations.

Vimeo: https://vimeo.com/268852482
YouTube: https://youtu.be/4z0H4TfMOwo


National Partnership for Women and Families 

Are you looking for a chance to shape and improve health quality measures at the ground level? This is groundbreaking work – it’s the first time a quality measure developer (CORE) has committed to partnering with patients and families in this way…across their work, and at every stage!

Are you a Medicare Beneficiary with an interest in serving as a Beneficiary Family Advisor?

The Quality Improvement Network- Organization (QIN-QIO) are seeking Regional Representatives to partner in co-designing programs and projects to improve care for all medicare beneficiaries.  To receive an application, please send a request to Stephen@pfccpartners.com  or connect directly with the QIN QIO serving the state you live in.  Learn more about the QIN-QIOs.

Do you live in the District of Columbia? Are you interested in partnering with your Quality Improvement Organization in the state to inform improvement efforts for all medicare beneficiaries served in DC? Please consider applying for the AQIN DC Beneficiary Family Advisory Council. Information and application are attached/below (I’m not sure if you link the documents on the page or post them – whatever way is easiest for the user). Thank you!