Engagement Opportunities

engagement opp graphic

Are you interested in partnering with projects, research teams and national organizations to have an impact beyond your local organization?  If so, please take a moment to let us know your interests by completing the PFA Interest Survey.

Webinar: “The Person and Family Engagement Journey”

Please join us for an interactive webinar to reflect on the journey that Hospital Improvement Innovation Networks (HIINs) and hospitals have taken to partner with patients and families to improve patient safety. Please join us for a Person and Family Engagement (PFE) Affinity Group event titled, “ The Person and Family Engagement Journey,” which will take place on:

Tuesday, November 27, 2018
3:00 – 4:00 PM ET
Registration Required: See Link Below

This event will highlight the significant progress of the HIIN community and celebrate successes in partnering with patients and families – at all levels of the hospital setting – to improve quality and safety. The event will also discuss the impact of implementing the five PFE Metrics on quality and safety outcomes and engage participants in a call to action to further accelerate PFE as a quality improvement strategy.

The event will be chaired by Jade Perdue, Director, Division of Quality Improvement Innovation Models Testing, Quality Improvement and Innovation Group, Center for Clinical Standards and Quality, CMS and Lt. Col. Steven Coffee, a member of the Patient and Family Advisory Council for Quality and Safety (PFACQS) at MedStar Health. They will be joined by Thomas Workman, Senior Advisor for the PFE Contractor, Brandie Manuel, Chief of Patient Safety and Quality at Jefferson Heallthcare, and a patient and family advisor from Jefferson Healthcare, a health system in the Washington State Hospital Association (WSHA) HIIN. Please bring your reflections, offers, and requests for opportunities to accelerate PFE implementation and improve patient safety.

Advance Registration is Required:
To register, please click on the following link and follow the instructions on the registration page:


Please be aware:
Once you register, you will then receive an email with an individual web-link to join the webinar.
This link will only work for 1 User, so if you would like to forward this event to additional team members, please send them the registration link.

Please direct any questions to the National Content Developer (NCD@impaqint.com).


Good news: Project ACHIEVE, a five-year nationwide best practices study on improving care transitions, is now complete! We’d like to know more about your role in health care and how you would prefer to receive results from the project.

Please take a few minutes to complete this brief questionnaire.

PCORI Peer Reviewers

Need patient reviewers for bariatric surgery, asthma.

The goal of peer review is to ensure that the primary research studies funded by the Patient Centered Outcomes Research Institute (PCORI) are held to the highest standards of scientific integrity, methodological rigor, and usefulness to patients, caregivers, clinicians, and other healthcare stakeholders. By law, all PCORI-funded primary research (i.e., research asking which of two or more approaches is better) must undergo peer review. The peer-review process adds to the credibility, authority, trustworthiness, and relevance of PCORI-funded research findings.

Visit here for more information and to apply.

Pediatric Starter Kit: Having the Conversation with Your Seriously Ill Child

The Conversation Project is a national initiative dedicated to helping people talk about their wishes for end-of-life care. The Pediatric Starter Kit is specifically designed to help parents of seriously ill children who want guidance about “having the conversation” with their children.

Starter Kit

The Conversation Project Website: https://theconversationproject.org/starter-kits/#pediatric-starter-kit

What Real Patient Engagement in Research Should Be

Libby Hoy, founder and CEO of Patient Family Centered Care (PFCC) Partners, shares an experience she had as a caregiver communicating with a researcher, and highlights how patient-centered outcomes research is improving these conversations.

Vimeo: https://vimeo.com/268852482
YouTube: https://youtu.be/4z0H4TfMOwo


National Partnership for Women and Families 

Are you looking for a chance to shape and improve health quality measures at the ground level? This is groundbreaking work – it’s the first time a quality measure developer (CORE) has committed to partnering with patients and families in this way…across their work, and at every stage!

Are you a Medicare Beneficiary with an interest in serving as a Beneficiary Family Advisor?

The Quality Improvement Network- Organization (QIN-QIO) are seeking Regional Representatives to partner in co-designing programs and projects to improve care for all medicare beneficiaries.  To receive an application, please send a request to Stephen@pfccpartners.com  or connect directly with the QIN QIO serving the state you live in.  Learn more about the QIN-QIOs.

Do you live in the District of Columbia? Are you interested in partnering with your Quality Improvement Organization in the state to inform improvement efforts for all medicare beneficiaries served in DC? Please consider applying for the AQIN DC Beneficiary Family Advisory Council. Information and application are attached/below (I’m not sure if you link the documents on the page or post them – whatever way is easiest for the user). Thank you!