Mar
28

PFAnetwork Coffee Chat

Please join us for our quarterly Coffee Chat. Coffee Chats are a time to come together and catch up on community updates and hot topics. We hope to see you there!

What Matters to You: A Virtual Coffee Chat on Health Care Value.      

Join us for an insightful Coffee Chat where we will dive into the perspectives and experiences of people in the healthcare system. Before the session, please take a moment to read this important paper: Understanding People’s Health Care Priorities: HCP-LAN Multi-Payer Alignment Blueprint.

In this discussion, we want to hear your thoughts on how we can help health plans, and the healthcare system better understand and address the needs of patients and families. What ideas do you have for ensuring people’s voices are heard and their priorities considered? Let’s collaborate and discover ways to improve the healthcare experience together.

 We look forward to hearing your insights and ideas during this engaging Coffee Chat! Register here!  

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Apr
16
to Apr 30

Public Engagement Events: Medicare Drug Price Negotiation Program

CMS will host a series of public engagement events this spring as part of the Medicare Drug Price Negotiation Program. The virtual public engagement events will provide an opportunity for patients, beneficiaries, caregivers, consumer and patient organizations, and other interested parties, such as clinicians and researchers, to share input relevant to the drugs selected for the second cycle of negotiations.

Dates: The public engagement events will be held April 16 – April 30, 2025. Participant registration will be open until March 12, 2025.

Attendance: Anyone from the public may attend the town hall meeting livestream as a listener. Registration is not required, and the link to the livestream will be available here on April 30, 2025. Accommodation for people with disabilities and language assistance (e.g., interpretation) may be available.

CMS will use the information shared during the roundtable events to better understand patients’ experiences with the conditions and diseases treated by the selected drugs and patients’ experiences with the selected drugs themselves. CMS will use the information shared during the town hall meeting to better understand clinicians’ experiences prescribing and/or managing treatment with the selected drugs or therapeutic alternatives and clinicians’ considerations that drive treatment choice between the selected drugs and therapeutic alternatives. The information shared during both the town hall meeting and the roundtable events will also inform CMS’ identification of therapeutic alternatives, key outcomes, and adjustment of the starting point to develop the initial offer in negotiating with manufacturers of selected drugs. CMS will release redacted transcripts for the town hall meeting and each of the roundtable events, omitting participant names and other identifying information after all the events have ended.

Public Engagement Events:

  • CMS will host one livestreamed town hall meeting for all selected drugs, focused on the clinical considerations related to the selected drugs. CMS encourages practicing clinicians and researchers, as well as other interested parties, to register to speak.

  • CMS will host 15 private (i.e., not livestreamed or open to press or general public) patient-focused roundtable events, one for each selected drug, which will be open to patients, patient advocacy organizations, and caregivers selected to speak at the events, and will allow for discussion among speakers.

Those who wish to make a public statement in the town hall meeting or to participate in a private roundtable event should register for the opportunity to speak at the public engagement events. Additional information to register for the events can be found here. For more information about the public engagement events, please see the Frequently Asked Questions document linked here.

If you are selected to speak at the event for which you registered, you will have 4 days after receiving the confirmation email to confirm your availability to participate at the selected event date and time, and any language interpretation services you need.

The public engagement events are subject to change, including postponement and/or cancellation.

Additional information on the public engagement events can be found here. Additional information about the Medicare Drug Price Negotiation Program can be found here.

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May
7

PFAnetwork Skills Exchange

Calling all Patient Family Partners (PFPs) looking to develop your Quality Improvement (QI) skills!   

Join us for a fun and interactive Quality Improvement (QI) Basics Skills Exchange designed just for YOU! Get ready to learn how to make a real difference in healthcare by partnering with others to improve care!   

When?   

  • May 7 & 14

  • 10am - 11:15am PT (1pm - 2:15pm ET)

Why Attend?

  • Learn the basics of Quality Improvement (QI) and how it makes healthcare safer and better for patients and families like you.

  • Build skills that will help you become a stronger partner in improving healthcare practices.

  • Learn with others who share your passion for making healthcare better.

  • Gain confidence in your role as a Patient Family Partner and help create positive changes!

What You'll Get:  

  • Two engaging, informative, and fun virtual sessions on Zoom

  • Practical knowledge and tips you can use right away

  • Opportunities to ask questions, interact, and share ideas with other Patient Family Partners

  • Tools to make an impact in your next healthcare partnership

Don't miss out – sign up today for this FREE, two-part Skills Exchange! Register here!

We can’t wait to see you there!     

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May
14

PFAnetwork Skills Exchange

Calling all Patient Family Partners (PFPs) looking to develop your Quality Improvement (QI) skills!   

Join us for a fun and interactive Quality Improvement (QI) Basics Skills Exchange designed just for YOU! Get ready to learn how to make a real difference in healthcare by partnering with others to improve care!   

When?   

  • May 7 & 14

  • 10am - 11:15am PT (1pm - 2:15pm ET)

Why Attend?

  • Learn the basics of Quality Improvement (QI) and how it makes healthcare safer and better for patients and families like you.

  • Build skills that will help you become a stronger partner in improving healthcare practices.

  • Learn with others who share your passion for making healthcare better.

  • Gain confidence in your role as a Patient Family Partner and help create positive changes!

What You'll Get:  

  • Two engaging, informative, and fun virtual sessions on Zoom

  • Practical knowledge and tips you can use right away

  • Opportunities to ask questions, interact, and share ideas with other Patient Family Partners

  • Tools to make an impact in your next healthcare partnership

Don't miss out – sign up today for this FREE, two-part Skills Exchange! Register here!

We can’t wait to see you there!     

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Jul
18

Building Bridges

Join us for this meaningful series and opportunity to connect! The purpose of the Building Bridges series is to create a sense of belonging within the PFAnetwork community. We are looking forward to having these candid conversations together!

Register here today!

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Oct
8

Building Bridges

Join us for this meaningful series and opportunity to connect! The purpose of the Building Bridges series is to create a sense of belonging within the PFAnetwork community. We are looking forward to having these candid conversations together!

Register here today!

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Mar
19

Public Engagement Events: Medicare Drug Price Negotiation Program (Extended)

CMS will host a series of public engagement events this spring as part of the Medicare Drug Price Negotiation Program. The virtual public engagement events will provide an opportunity for patients, beneficiaries, caregivers, consumer and patient organizations, and other interested parties, such as clinicians and researchers, to share input relevant to the drugs selected for the second cycle of negotiations.

Dates: The public engagement events will be held April 16 – April 30, 2025. The deadline to register has been extended and will now be open until March 19, 2025.

Attendance: Anyone from the public may attend the town hall meeting livestream as a listener. Registration is not required, and the link to the livestream will be available here on April 30, 2025. Accommodation for people with disabilities and language assistance (e.g., interpretation) may be available.

CMS will use the information shared during the roundtable events to better understand patients’ experiences with the conditions and diseases treated by the selected drugs and patients’ experiences with the selected drugs themselves. CMS will use the information shared during the town hall meeting to better understand clinicians’ experiences prescribing and/or managing treatment with the selected drugs or therapeutic alternatives and clinicians’ considerations that drive treatment choice between the selected drugs and therapeutic alternatives. The information shared during both the town hall meeting and the roundtable events will also inform CMS’ identification of therapeutic alternatives, key outcomes, and adjustment of the starting point to develop the initial offer in negotiating with manufacturers of selected drugs. CMS will release redacted transcripts for the town hall meeting and each of the roundtable events, omitting participant names and other identifying information after all the events have ended.

Public Engagement Events:

  • CMS will host one livestreamed town hall meeting for all selected drugs, focused on the clinical considerations related to the selected drugs. CMS encourages practicing clinicians and researchers, as well as other interested parties, to register to speak.

  • CMS will host 15 private (i.e., not livestreamed or open to press or general public) patient-focused roundtable events, one for each selected drug, which will be open to patients, patient advocacy organizations, and caregivers selected to speak at the events, and will allow for discussion among speakers.

Those who wish to make a public statement in the town hall meeting or to participate in a private roundtable event should register for the opportunity to speak at the public engagement events. Additional information to register for the events can be found here. For more information about the public engagement events, please see the Frequently Asked Questions document linked here.

If you are selected to speak at the event for which you registered, you will have 4 days after receiving the confirmation email to confirm your availability to participate at the selected event date and time, and any language interpretation services you need.

The public engagement events are subject to change, including postponement and/or cancellation.

Additional information on the public engagement events can be found here. Additional information about the Medicare Drug Price Negotiation Program can be found here.

View Event →
Mar
12

Public Engagement Events: Medicare Drug Price Negotiation Program

CMS will host a series of public engagement events this spring as part of the Medicare Drug Price Negotiation Program. The virtual public engagement events will provide an opportunity for patients, beneficiaries, caregivers, consumer and patient organizations, and other interested parties, such as clinicians and researchers, to share input relevant to the drugs selected for the second cycle of negotiations.

Dates: The public engagement events will be held April 16 – April 30, 2025. Participant registration will be open until March 12, 2025.

Attendance: Anyone from the public may attend the town hall meeting livestream as a listener. Registration is not required, and the link to the livestream will be available here on April 30, 2025. Accommodation for people with disabilities and language assistance (e.g., interpretation) may be available.

CMS will use the information shared during the roundtable events to better understand patients’ experiences with the conditions and diseases treated by the selected drugs and patients’ experiences with the selected drugs themselves. CMS will use the information shared during the town hall meeting to better understand clinicians’ experiences prescribing and/or managing treatment with the selected drugs or therapeutic alternatives and clinicians’ considerations that drive treatment choice between the selected drugs and therapeutic alternatives. The information shared during both the town hall meeting and the roundtable events will also inform CMS’ identification of therapeutic alternatives, key outcomes, and adjustment of the starting point to develop the initial offer in negotiating with manufacturers of selected drugs. CMS will release redacted transcripts for the town hall meeting and each of the roundtable events, omitting participant names and other identifying information after all the events have ended.

Public Engagement Events:

  • CMS will host one livestreamed town hall meeting for all selected drugs, focused on the clinical considerations related to the selected drugs. CMS encourages practicing clinicians and researchers, as well as other interested parties, to register to speak.

  • CMS will host 15 private (i.e., not livestreamed or open to press or general public) patient-focused roundtable events, one for each selected drug, which will be open to patients, patient advocacy organizations, and caregivers selected to speak at the events, and will allow for discussion among speakers.

Those who wish to make a public statement in the town hall meeting or to participate in a private roundtable event should register for the opportunity to speak at the public engagement events. Additional information to register for the events can be found here. For more information about the public engagement events, please see the Frequently Asked Questions document linked here.

If you are selected to speak at the event for which you registered, you will have 4 days after receiving the confirmation email to confirm your availability to participate at the selected event date and time, and any language interpretation services you need.

The public engagement events are subject to change, including postponement and/or cancellation.

Additional information on the public engagement events can be found here. Additional information about the Medicare Drug Price Negotiation Program can be found here.

View Event →
Feb
11

Core Competencies of Effective Patient Family Partners - PFAnetwork Skills Exchange

Are you passionate about improving healthcare through your lived experience? The role of Patient Family Partner (PFP) is open to anyone who wants to use their unique experiences to make a difference. But what does it take to be an effective and impactful PFP?

Join us for Core Competencies of Effective Patient Family Partners! This two-part skills exchange is designed to help you build the key skills you need to thrive as a Patient Family Partner. Together, we’ll explore the Five Core Competencies of Effective Partners - thoughtfully created by Patient Family Partners, for Patient Family Partners. You will leave these sessions with practical tools and techniques to strengthen your healthcare partnerships. A big part of the skills exchange is learning from each other’s lived experiences, so come ready to share, learn, and grow with your peers! Register here.

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Feb
4

Core Competencies of Effective Patient Family Partners - PFAnetwork Skills Exchange

Are you passionate about improving healthcare through your lived experience? The role of Patient Family Partner (PFP) is open to anyone who wants to use their unique experiences to make a difference. But what does it take to be an effective and impactful PFP?

Join us for Core Competencies of Effective Patient Family Partners! This two-part skills exchange is designed to help you build the key skills you need to thrive as a Patient Family Partner. Together, we’ll explore the Five Core Competencies of Effective Partners - thoughtfully created by Patient Family Partners, for Patient Family Partners. You will leave these sessions with practical tools and techniques to strengthen your healthcare partnerships. A big part of the skills exchange is learning from each other’s lived experiences, so come ready to share, learn, and grow with your peers! Register here.

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Jan
24

Building Bridges - LGBTQ+

Join us for this meaningful series and opportunity to connect! The purpose of the Building Bridges series is to create a sense of belonging within the PFAnetwork community. This session will elevate PFAnetwork members to share lived experiences navigating the healthcare system representing people from the LGBTQ+ community. We are looking forward to having these candid conversations together!

Register here today!

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Nov
15

Quality Improvement Program – New Jersey Social Drivers of Health (SDOH) Listening Session

• For New Jersey Residents

• Virtual Meeting Format

• Stipend Available

• 2 Hour Time Commitment

We’d like to invite PFAnetwork members living in New Jersey to share their experiences with how the health system did or did not address your unique social needs. PLEASE SUBMIT INTEREST BY NOVEMBER 15.

The Quality Improvement Program in New Jersey is hosting a Social Drivers of Health Learning Collaborative for hospitals. Social drivers of health (SDOH) are the conditions in which people live, work, learn, and play, such as access to housing, food, healthcare, and transportation, that affect well-being.

We invite patients and family caregivers who have experience being screened for or accessing resources related to SDOH to participate in a listening session. In December, hospitals will have the opportunity to listen to your firsthand experiences and insights. If you are interested in sharing your experience with hospital staff to help improve the process of screening and addressing SDOH for others, please complete this brief form, and we'll be in touch.

Complete the interest form here: Quality Improvement Program - New Jersey Social Drivers Of Health Listening Session Interest Form

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Nov
13

Quality Improvement (QI) Basics for Patient Family Partners

Join us for our upcoming Quality Improvement (QI) Basics for Patient Family Partners!

Part 1: November 6th

Part 2: November 13th

10-11am PT / 1-2pm ET.

Quality improvement (QI) is a framework used by health systems to systematically advance practices for safe, timely, effective, equitable, and person-centered care. And these quality improvement projects are significantly more impactful when they partner directly with patients, family caregivers, and other people with key lived experiences. We have essential insights they may otherwise be missing.

Join us November 6 and 13 for Quality Improvement Basics for Patient Family Partners to develop a practical understanding of the QI framework. These sessions are designed for you to engage with confidence and expanded impact in your next partnership. Register for the QI Basics course here.

These sessions will be held virtually in Zoom.

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Nov
6

Quality Improvement (QI) Basics for Patient Family Partners

Join us for our upcoming Quality Improvement (QI) Basics for Patient Family Partners!

Part 1: November 6th

Part 2: November 13th

10-11am PT / 1-2pm ET.

Quality improvement (QI) is a framework used by health systems to systematically advance practices for safe, timely, effective, equitable, and person-centered care. And these quality improvement projects are significantly more impactful when they partner directly with patients, family caregivers, and other people with key lived experiences. We have essential insights they may otherwise be missing.

Join us November 6 and 13 for Quality Improvement Basics for Patient Family Partners to develop a practical understanding of the QI framework. These sessions are designed for you to engage with confidence and expanded impact in your next partnership. Register for the QI Basics course here.

These sessions will be held virtually in Zoom.

View Event →
Sep
20

Building Bridges Series

Join us for a meaningful new series and opportunity to connect! The purpose of the Building Bridges series is to create a sense of belonging within the PFAnetwork community. This session will elevate PFAnetwork members to share lived experiences navigating the healthcare system representing people with disabilities. We are looking forward to having these candid conversations together!

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Jun
25

From Story to Strategy

FROM STORY TO STRATEGY is a 3 session Skills Exchange workshop series that will help you discover how to strategically use your healthcare experiences to have the impact you want on your audience.

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Jun
18

From Story To Strategy

FROM STORY TO STRATEGY is a 3 session Skills Exchange workshop series that will help you discover how to strategically use your healthcare experiences to have the impact you want on your audience.

View Event →