Apr
28

INSPIRE Peer Connection Summit

INSPIRE Peer Connection Summit

Sunday, April 28, 3-4pm PT (6-7pm ET)

The INSPIRE Peer Connection Summit is all about bringing people with lived experience together. Creating a safe space for everyone's unique story is heard, respected, and valued. This is a chance to build relationships around our shared passion for partnering to improve healthcare. To bring yourself, and offer others strength and support.

This is a special gathering for people who are living with complex medical and social challenges navigating various health care systems to get help. It's a time for making connections and celebrating the nationwide community of people with lived-experiences.

For a comprehensive look at the INSPIRE project, consider attending the PFCCpartners Community of Practice Workshop on April 26. Read on for more information.

We look forward to you joining us.

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Apr
26

Building the Table Together: Lessons on Authentic Community Engagement from INSPIRE

Building the Table Together: Lessons on Authentic Community Engagement from INSPIRE

Friday, April 26, 12-1pm PST (3-4pm EST)

Presented by:

Evelyne Kane, MPH
Associate Director, Community Engagement & Capacity Building
Camden Coalition

Savy Makalena
CEO & Founder
Gimme A Break

Community engagement is a powerful tool for organizations and communities that want to create lasting and positive change. When done well, community engagement builds trust, advances health equity, creates cost-savings and efficiencies for healthcare organizations, and leads to healthy and thriving communities. Unfortunately, too often, well-intentioned community engagement initiatives are limited in diversity, fail to achieve meaningful outcomes, and fall short of authentic power-sharing.

INSPIRE (Initiating National Strategies for Partnership, Inclusion, and Real Engagement) is a national partnership project that brings together the Camden Coalition, Community Catalyst, the Center to Advance Consumer Partnership, PFCCpartners, the Institute for Patient-and Family-Centered Care, alongside a team of experts with lived experience. Together we are working to co-design a national strategy to advance meaningful partnerships between healthcare organizations and community members.

During this session, members of the INSPIRE team will share major finding from our research drawing from experiences of over 300 healthcare stakeholders and community members from across the country and will offer principles and actionable steps that healthcare organizations and people with lived experience can take to advance meaningful partnerships-together.

This event will be recorded and made available on the PFCCpartners YouTube Channel.

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Mar
29

Core Competencies of Effective Partners: Part 2 (CLOSED)

Part 1: Friday March 15th, 10-11:30am PT (1-2:30pm ET)
Part 2: Friday March 29th, 10-11:30am PT (1-2:30pm ET)

Sponsored by Camden Coalition

The role of Patient Family Partner is open to anyone with a passion to use their lived experiences to influence improvement in healthcare. So, what skills do you need to be an effective and impactful Patient Family Partner?

Join us for the Core Competencies of Effective Partners 2-part, virtual Skills Exchange where we dive into the essential skills needed to excel as a Patient Family Partner (PFP). This skills exchange was created to empower you as a PFP and a valued healthcare partner. We will introduce the 5 Core Competencies of Effective Partners, thoughtfully created by PFPs, for PFPs.

This session will provide you with practical insights and techniques, helping you do your best in the healthcare partnership landscape. A core focus of the skills exchange is discovering what we can learn from each other’s lived experiences so please be prepared to share and learn with us!

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Mar
19

Diabetes Management 3-Touch Campaign Listening Session

You're invited to join us for a listening session in partnership with Comagine Heath, tailored to individuals who have been diagnosed with diabetes. Your insights are invaluable in helping us understand and address the challenges faced during the diagnosis process and subsequent management of diabetes. We're eager to learn about the gaps in knowledge encountered during your journey with diabetes and how we can enhance the support system for individuals facing similar challenges. Your input will play a pivotal role in shaping future strategies for diabetes management and support services. Together, we can create a more informed and supportive environment for those navigating through the complexities of diabetes.

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Mar
15

Core Competencies of Effective Partners: Part 1 (CLOSED)

Part 1: Friday March 15th, 10-11:30am PT (1-2:30pm ET)
Part 2: Friday March 29th, 10-11:30am PT (1-2:30pm ET)

Sponsored by Camden Coalition

The role of Patient Family Partner is open to anyone with a passion to use their lived experiences to influence improvement in healthcare. So, what skills do you need to be an effective and impactful Patient Family Partner?

Join us for the Core Competencies of Effective Partners 2-part, virtual Skills Exchange where we dive into the essential skills needed to excel as a Patient Family Partner (PFP). This skills exchange was created to empower you as a PFP and a valued healthcare partner. We will introduce the 5 Core Competencies of Effective Partners, thoughtfully created by PFPs, for PFPs.

This session will provide you with practical insights and techniques, helping you do your best in the healthcare partnership landscape. A core focus of the skills exchange is discovering what we can learn from each other’s lived experiences so please be prepared to share and learn with us!

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Mar
12

Fireside Chat with Comagine Health Leadership

Fireside Chat with Comagine Health Leadership
Tuesday, March 12th
11pm - 12pm PST (2pm - 3pm EST)

You are invited to participate in a Fireside Chat with quality improvement leaders from Comagine Health. The Centers for Medicare & Medicaid Services (CMS) contracts with organizations like Comagine Health to carry out the program mission. As the current Quality Improvement Network-Quality Improvement Organization (QIN-QIO) contractor for Idaho, Nevada, New Mexico, Oregon, Utah and Washington, Comagine Health assists with:

• Quality improvement and patient safety initiative implementation

• Capacity building through education and training

• Community convening to align and advance common goals

During the Fireside Chat, we will share CMS’s future plans for improving healthcare, and importantly, we'll hear your voices in response to some key questions!

• What are the most pressing healthcare challenges you face today?

• How can health systems better serve patients and families in their healthcare journey?

• What innovative solutions do you envision for enhancing healthcare quality?

Your presence and perspective are crucial in shaping a brighter, healthier future for all. Register now to secure your spot at this event and be a part of the conversation. Thank you for your dedication to advancing healthcare quality together!

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Mar
10
to Mar 16

Patient Safety Awareness Week

Join us in recognition of Patient Safety Awareness Week, starting March 10th! Patient Safety Awareness Week serves as a dedicated time and platform for growing awareness about patient safety and recognizing the work already being done.

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Feb
29

Acumen Wave 6 Survey CLOSES TODAY!

Hurry Survey Closes TODAY!

Acumen Field Testing Survey

Dates: February 1-29

Our partners at Acumen are requesting all PFAnetwork members to complete a survey related to your lived experience as a patient, family member, or caretaker with regard totwo episode-based cost measures in development.

These measures are:

1. Movement Disorders: Parkinson’s and Related Conditions, Multiple Sclerosis (MS), and Amyotrophic Lateral Sclerosis (ALS);

2. Non-Pressure Ulcers (e.g., arterial, diabetic, venous, and other non-pressure ulcer types). 

If you have 5-10 minutes to provide your insights related to your experience with these conditions, your experience will inform the measures under development. Please feel free to skip any questions that are not relevant to your experience.

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Feb
1
to Feb 29

Acumen Field Testing Survey

New SURVEY Engagement Opportunity!

Acumen Field Testing Survey

Dates: February 1-29

Our partners at Acumen are requesting all PFAnetwork members to complete a survey related to your lived experience as a patient, family member, or caretaker with regard totwo episode-based cost measures in development.

These measures are:

1. Movement Disorders: Parkinson’s and Related Conditions, Multiple Sclerosis (MS), and Amyotrophic Lateral Sclerosis (ALS);

2. Non-Pressure Ulcers (e.g., arterial, diabetic, venous, and other non-pressure ulcer types). 

If you have 5-10 minutes to provide your insights related to your experience with these conditions, your experience will inform the measures under development. Please feel free to skip any questions that are not relevant to your experience.

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Dec
25

Christmas Day

Christmas, celebrated on December 25th, is a cherished holiday that brings joy, togetherness, and goodwill to people around the world. It marks the birth of Jesus Christ and is a time for families and friends to come together in the spirit of love and giving.

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Dec
15

Hanukkah (Day 8)

Hanukkah, also known as the Festival of Lights, is a cherished Jewish holiday that typically falls in December. Lasting eight days, it commemorates the miracle of the oil that burned for eight nights in the ancient Temple of Jerusalem.

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Dec
15

PFAnetwork Monthly Coffee Chat

Facilitated by: PFAnetwork Members & Special Guests

Our monthly meetings will be all about YOU! Each month we will feature one advisor or a group of advisors working on a project that they would like to share with the network. This will be a casual conversation between patient family advisors and center around topics you want to talk about. These meetings will be the third Friday of the month. Grab your morning beverage of choice and join us!

This virtual meeting will be held via Zoom meeting. You will be provided a link to the meeting after registration. All are welcome. For questions, please contact Laura Jackson at laura@pfccpartners.com

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Dec
14

Hanukkah (Day 7)

Hanukkah, also known as the Festival of Lights, is a cherished Jewish holiday that typically falls in December. Lasting eight days, it commemorates the miracle of the oil that burned for eight nights in the ancient Temple of Jerusalem.

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Dec
14

Cynosure HQIC Patient Family Partnerships Meeting

Facilitated by: PFCCpartners

Patient/family advisor community conversation with leaders of hospitals around the country. This Center for Medicare/Medicaid Services program supports rural and critical access hospitals with tools, resources, and connections for improving the quality of care they deliver. Join a committed and innovative team to contribute to this regional collaborative of over 300 hospitals around the country.

This meeting is open to interested, new, and experienced Patient Family Partners who are looking to partner with healthcare. This opportunity is open to people from the states of CA, MT, AZ, FL, CO, LA, NM, TN, IN, IL, TX.

This virtual meeting will be held via Zoom meeting. You will be provided a link to the meeting after registration.

If you have questions, please contact Laura Jackson at laura@pfccpartners.com

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Dec
13

Hanukkah (Day 6)

Hanukkah, also known as the Festival of Lights, is a cherished Jewish holiday that typically falls in December. Lasting eight days, it commemorates the miracle of the oil that burned for eight nights in the ancient Temple of Jerusalem.

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Dec
12

Hanukkah (Day 5)

Hanukkah, also known as the Festival of Lights, is a cherished Jewish holiday that typically falls in December. Lasting eight days, it commemorates the miracle of the oil that burned for eight nights in the ancient Temple of Jerusalem.

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Dec
11

Hanukkah (Day 4)

Hanukkah, also known as the Festival of Lights, is a cherished Jewish holiday that typically falls in December. Lasting eight days, it commemorates the miracle of the oil that burned for eight nights in the ancient Temple of Jerusalem.

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Dec
10

Hanukkah (Day 3)

Hanukkah, also known as the Festival of Lights, is a cherished Jewish holiday that typically falls in December. Lasting eight days, it commemorates the miracle of the oil that burned for eight nights in the ancient Temple of Jerusalem.

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