In What Ways Are You Engaged As A Patient Family Advisor?
Hello friends,
How have you been engaged in your role as a Patient Family Advisor? The opportunities for the role continue to grow as healthcare organizations are looking for more ways to engage with patients and families in improvement. On this month’s PFAnetwork Virtual Meeting, participants shared how they have been engaged in their role.
QUESTION: In what ways have you engaged as a patient family advisor?
ANSWERS:
• "Beginning RDAC, HQIC, made a huge PDF of resources for parents with special needs children."
• "Organized a parent liaison group for our rare disease nationwide."
• "I have sat on Steering Committees."
• "Run a local chapter of a nonprofit."
• "I am an ambassador (engagement) for one organization, helping others get involved."
• "Sit on advisory panels for healthcare policy for two organizations."
• "There are Facebook groups that focus on certain diagnosis. I’m on one that is local for families that take their kids to children’s hospital. We exchange information and ask questions."
• "Advocate on panels."
• "PCORI"
• "Education tips for church members."
• "Hosting educational COVID webinars about COVID prevention"
• "Executive system committees."
• "Helped with phone tree testing - advised on tips for best practices, mental health
practices"
• "Awareness - helped set up a website/overall user friendly COVID-19.
• "Support prenatal guidelines support, in office visit verses telehealth."
These responses will be shared with staff at healthcare organizations that are embarking on new ways to partner with patients and families through a Patient Family Partnership Hub. A Partnership Hub is a community of patients and family caregivers with a passion to improve healthcare for a specific organization. During the Virtual Meeting, Jan Lambert, member of the Comagine Health Patient Family Partnership Hub shared her enthusiasm for being able to learn how patients and families are partnering across the organization. Jan felt the multiple Patient Family Advisory Councils across Comagine Health were siloed and this new strategy would bring them all together!
Read on to learn how to join a Patient Family Partnership Hub in your area.
Be well,
Lindsey
PFCCpartners, Director of Education
