The Agency for Healthcare Research and Quality’s (AHRQ) mission is to produce evidence to make health care safer, higher quality, more accessible, equitable, and affordable, and to work within the U.S. Department of Health and Human Services and with other partners to make sure that the evidence is understood and used.
The American Hospital Association (AHA) is the national organization that represents and serves all types of hospitals, health care networks, and their patients and communities. Its mission is to advance the health of individuals and communities by leading, representing, and serving hospitals, health systems and other related organizations that are accountable to the community and committed to health improvement.
Citizens for Patient Safety (CPS) was founded in 2005 by Patricia Skolnik after she and her husband, David, lost their only child to medical error and poor communication. CPS’ mission is to increase engagement between patients/families and providers for better healthcare outcomes. CPS is committed to contributing to the achievement of the triple aim and our work is in alignment with National Quality Strategies and Goals. CPS provides curriculum, training and coaching designed to improve health literacy, strengthen person and family engagement as partners in their care and promote effective communication and coordination of care through shared decision-making.
Early Start Family Resource Centers, staffed by families of children with special needs, are California’s Part C of the Individuals with Disabilities Education Act (IDEA) program. Part C provides early intervention service systems for infants and toddlers with or at risk for disabilities, and their families. Overall, the Family Resource Center Networks, mission is to promote, expand and share available resources with families that have children with special health care needs and/or other disabilities in Los Angeles County.
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Family Voices builds the capacity of parent-run centers throughout the country via the many state affiliate programs that provide families with the information and supports they need to make informed decisions about the health care of their children. They provide information and a forum for parent centers and families to advocate for improved public and private policies, builds partnerships among professionals and families, and serves as a vital resource on health care.
Working to improve health and healthcare worldwide, The Institute for Healthcare Improvement (IHI) takes a unique approach to working with health systems, countries, and other organizations on improving quality, safety, and value in healthcare. This science of improvement is an applied science that emphasizes innovation, rapid-cycle testing in the field, and spread in order to generate learning about what changes, in which contexts, produce improvements. It is characterized by the combination of expert subject knowledge with improvement methods and tools. It is multidisciplinary — drawing on clinical science, systems theory, psychology, statistics, and other fields. The National Patient Safety Foundation (NPSF) Call to Action of IHI relies on strong partnerships with healthcare leaders and policymakers we have the opportunity to improve patient safety and ensure that patients and those who care for them are free from preventable harm.
The Institute for Patient- and Family-Centered Care (IPFCC), a non-profit organization founded in 1992, takes pride in providing essential leadership to advance the understanding and practice of patient- and family-centered care. By promoting collaborative, empowering relationships among patients, families, and healthcare professionals, IPFCC facilitates patient- and family-centered change in all settings where individuals and families receive care and support. IPFCC also serves as a central resource for policymakers, administrators, program planners, direct service providers, educators of health care professionals, researchers, design professionals, and patient and family leaders.
The Patient-Centered Primary Care Collaborative (PCPCC) is a not-for-profit multi-stakeholder membership organization dedicated to advancing an effective and efficient health system built on a strong foundation of primary care and the patient-centered medical home. Representing a broad group of public and private organizations, the PCPCC’s mission is to unify and engage diverse stakeholders in promoting policies and sharing best practices that support growth of high-performing primary care and achieve the “Quadruple Aim”: better care, better health, lower costs, and greater joy for clinicians and staff in delivery of care.
Planetree, Inc. is a mission-based not-for-profit organization that partners with healthcare organizations around the world and across the care continuum to transform how care is delivered. Powered by over 50,000 focus groups with patients, families, and staff, and over 35 years of experience working with healthcare organizations, Planetree is uniquely positioned to represent the patient voice and advance how professional caregivers engage with patients and families. Guided by a foundation in 10 components of patient centered care, Planetree informs policy at a national level, aligns strategies at a system level, guides implementation of care delivery practices at an organizational level, and facilitates compassionate human interactions at a deeply personal level.
A 501(c)(3) non-profit organization and member of the National Quality Forum, The Patients’ View Institute (PVI) is committed to organizing and amplifying the patient voice to have a profound impact on the quality of care. PVI strives to derive meaning from patient stories in efforts to connect heart and mind to the importance of patient care. Utilize this source to help drive the message home to your staff or organization.
Medically Induced Trauma Support Services (MITSS), Inc. is a non-profit organization founded “To Support Healing and Restore Hope” to patients, families, and clinicians who have been affected by an adverse medical event. Medically induced trauma is an unexpected outcome that occurs during medical and/or surgical care that affects the emotional well being of the patient, family member, or clinician. MITSS achieves its mission by creating awareness and education, providing direct support services to patients, families, and clinicians, and advocating for action.
The Disparities Solution Center (DSC) is dedicated to the development and implementation of strategies that advance policy and practice to improve quality, eliminate racial and ethnic disparities, and achieve equity in health care in a time of rapid transformation. Through developing and disseminating models for improving quality and identifying and addressing racial and ethnic disparities in health care nationally, regionally, and locally, DSP hopes to move beyond research to action.
OpenNotes is the international movement dedicated to making healthcare more open and transparent by urging doctors, nurses, therapists, and others to share their visit notes with patients. Are you and your peers of the 18+ million patients who have online access to their visit notes? If not, OpenNotes is a great resource to you and your advisory council. The ultimate goal is to change the way visit notes are managed. By providing visit notes to patients and families, they are empowered to feel more in control of their healthcare decisions and improve the quality and safety of healthcare.
Cal Hospital Compare features information on California hospitals that helps consumers make smarter and more informed choices when making medical decisions. Publicly available information about hospital quality — and consumers eager to consider quality in their medical decisions — will improve the health care system. Cal Hospital Compare is a performance reporting initiative managed by a multi-stakeholder Board of Directors, with representatives from hospitals, purchasers, health plans, and consumer groups. Prior to 2016, Cal Hospital Compare was known as the California Hospital Assessment Task Force (CHART). CHART was first established in 2004 for the purposes of developing a statewide hospital performance reporting system using a multi-stakeholder collaborative process. CHART aggregated data from participating hospitals until 2011, when its Board of Directors moved to using only publicly available data sources for all hospitals, not just those participating voluntarily. CHART, and now Cal Hospital Compare, are supported by a generous grant from the California Healthcare Foundation (CHCF).