There are several ways to get stay connected with the PFANetwork Community.
National Launch – IT Patient Family Advisory Council
Monthly Virtual Meetings
When: The second Wednesday of every month, beginning at Noon PST.
Telephone: +1 646 558 8656 Meeting ID: 872 321 887
International numbers available: https://zoom.us/zoomconference?m=wMbFyAGGCYZ9yJQVJl88GXUZ8OTi9LqS
PFAnetwork Yammer Community!
In an effort to enhance the community collaboration and sharing among all of the patients and families serving in their role of Advisor, we have created an online community as part of the PFAnetwork. In this community, held on a networking and sharing site called Yammer, you can share your best practices and projects that you are working, ask questions of other Advisors, and continue to stay up to date on everything in the network.
A virtual platform to connect with Peer Support for a variety of disease and diagnosis. Thanks to a generous collaboration with SmartPatients the PFANetwork has its own space to virtually connect, ask questions and contribute ideas. To access the SmartPatients platform, enter your email address here:
Tell us about yourself – take the PFANetwork Advisor Interest Survey!
As interest and participation in the PFANetwork continues to grow, we are developing a registry to improve our ability to make connections for you to one another for support and to engagement opportunities. The more we understand your Advisory activities, priorities, and interests, the more we can support your efforts. Please contact Lindsey with questions at Lindsey@pfccpartners.com.